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Tangled

The hair is the richest ornament of women.
— Martin Luther

My beloved grandmother, who Nate and I (and his children, and our cousins) call Mimi, was diagnosed with invasive ductal carcinoma – breast cancer – last month.  It’s stage 2, so relatively early, but grade 3, so relatively aggressive.  She had her first chemotherapy treatment yesterday.

David and I went down to visit her in North Carolina last weekend.  She is, perhaps understandably, very bitter about her diagnosis.  She sort of resents having to take a year out of her life for chemo and then surgery and then radiation.  But more than anything else, at least right now, she’s devastated that she’s going to lose her hair.  Her doctor gave her a prescription for a wig (I presume so that it will be paid for by insurance), and although she’s trying to take it in stride, she’s pretty angry that it’s going to come to that.

My parents were down to see her the weekend before.  My mom had breast cancer many years ago – last fall was 5 years since she finished treatment and she’s not had any relapses, so I guess they consider her “cured.”  When Mimi expressed her sadness over losing her hair, my mother said, “It’s just hair.”   I have two problems with this:  First, that comment seems to imply that losing your hair is no big deal, but it’s not as if my mom went around town with her bald head shining for all to see – she wore scarves all the time, even in the heat of summer, and the only one she let see her without them was my dad.  I want to be clear that I don’t fault my mother for that at all – if that’s how she felt most comfortable in public, I’m all for it – but it’s almost like she’s forgotten how losing her hair affected her and thinks Mimi shouldn’t be making a big deal about it, and I don’t think that’s fair.

Second, and more importantly, that comment shows just how little my mother understands Mimi (who is my father’s mother).  My Mimi is a vain woman.  I say that without any judgment at all; it’s a simply fact of who she is.  She is 78 years old and still dyes her hair her signature auburn.  She puts on full make-up every day, no matter what.  She wears pantyhose under her pants in all seasons – smooths things out, you know.  In her 60s, she had (minor) plastic surgery on her face.  When she turned 65, I said, “Now you can retire!”  She said, “No, I can’t – everyone at work thinks I just turned 60!”  And that’s true.  She lies about her weight on her driver’s license.  She is vain, and her hair is a central piece of her identity.  It’s not  just hair.

And more than any of that, as she explained to me last weekend, her sadness at losing her hair is all tied up with memories of her father, who is long gone, but who she remembers so fondly.  She said, “My sister had straight hair, but I had curly hair.  Whenever I went somewhere with my father, he would introduce me saying, ‘This is Diane, my curly-haired daughter.'”  I get that, so much.  It is not just hair.  Not for her.

I don’t know that my own hair means that much to me.  I mean, I like it and all, but I’m not sure I’m all that attached to it.  I’d like to think that if I were in Mimi’s position, I’d take it as an opportunity to play with wigs and do crazy stuff – no one would dare say anything, right?  Cancer!

In all seriousness, I can’t possibly know how I’d react in her circumstances, and I’m sure as hell not going to make her feel bad for feeling angry and sad and fearful and whatever else she feels facing her impending hair loss.  Each person’s experience is unique, and whatever Mimi feels is legitimate and valid.  My only job is to be there for her, whatever she needs.

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Don’t Call It a Comeback

There’s nothing half so pleasant as coming home again.
— Margaret Elizabeth Sangster

Well, hello there.  Long time, no see.  Welcome to my new home on the internet – a slight url change, but the old one should redirect you here, if you’d rather not update your bookmarks and readers.  A new outfit, too.  I dig it.  What do you think?

Lots has happened since I was last here.  The biggest, of course, is that David and I got married.  It was a wonderful day, and I still think about it every day, and it always makes me smile.  We went to Montreal and Quebec City on our honeymoon and managed to visit every state in New England, at least briefly, on our way there and back.

We’re house hunting now.  We just signed a 6-month lease renewal on our apartment, but hopefully we’ll be in our very first home by the end of September!  Our realtor asked us, since we have quite a bit of time before we even have to start looking seriously, if we would consider being on House Hunters!  I would totally do it, but David might take some convincing.  I’ll keep you posted if it happens – how cool would that be?

We’re also thinking about babies, in a not entirely abstract way, which is both thrilling and terrifying.  We’re not quite there yet – we want to be in our house first – but we’re already talking and thinking about stuff like maternity leave and whose parents will come to help out in the beginning and awesome names for potential offspring, largely culled from NFL players.  D’Brickashaw, anyone?

I’m running again, which is amazing.  I hated it so much when I trained for the race in Boston in 2008, but lately people all around me have gotten into it (particularly my old pal Lydia, who totally inspired me), and I got sucked in.  It turns out that what I hated about it before was running on the treadmill, which for some reason I assumed was better than running outside because it forced me to run at a certain speed.  Running outside is SO much better, speed be damned.  It’s more interesting, it feels better, and although I’m not fast, I adore it.  I’ve been doing the Couch to 5k program steadily since January 1.  I’ve stalled out a little bit lately, here in the middle of week 7, due first to travel and now to injury (trochanteric bursitis rearing its ugly head again), but I’m committed to sticking it out.  I’m signed up for the GW Parkway Classic 5k on April 22, and I intend to run the entire thing.  Karen is going to do it with me – she just started Couch to 5k, too!

Generally speaking, things are going well.  I’m ready to be back here, though; I’ve missed it, and you.  Let’s catch up!

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Three Things Thursday

Chemically speaking, chocolate really is the world’s perfect food.
— Michael Levine, nutrition researcher, quoted in The Emperors of Chocolate: Inside the Secret World of Hershey and Mars

1. Pink and orange M&Ms for wedding favors! (But not personalized, because, Jesus Christ, have you seen how much those things cost?)

2. the drop in temperature today – it was 66 degrees when I left my office at 5:30 – yay, Fall!

3. Carcassonne, our new favorite board game




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Pitchy

Through all the notes that sound within the earth’s resplendent dream, one whispered note alone sounds for the secret listener.
— Friedrich Schlegel

I walked into the choir room of the local high school tonight and nearly cried.  It was so like the choir room of my own high school, 100 miles and 18 years away.  The staffed blackboard is now a staffed white board, but the risers, the competition trophies, the hastily scrawled try-out info, the grand piano — they’re all the same.  Girls in matching formal dresses and boys in tuxedos with matching cumberbunds and bow ties smile out from pictures taken at competitions, and in an instant, I’m 15 again at JMU or 16 again at DisneyWorld, taking on the world with my high school choir cohorts.

The tears were also a product of fear and anxiety.  Tonight was the first night of the new county community chorus I’d signed up to take part in, and having not sung in an organized group since before I lost my hearing, I felt no small measure of trepidation.  What if, after all this time, after all this longing to sing in public again, to be a part of a group, I just couldn’t do it? I didn’t know if I could.  I knew I could sing by myself, and even to music, but I had no idea if I could sing as part of a larger group.

It turns out, really, that I can’t.  After introductions and the business aspects of a first meeting of any group, the director organized us by part – sopranos on the left, tenors and basses in the middle, and altos on the right.  Somehow I ended up in the worst possible spot – in the back row of altos with no one to my right  (there were several empty seats between me and where the sopranos began) and no one behind me.  I didn’t say anything.  I had imagined in my head keeping my hearing impairment a secret until some perfect  moment when it would be revealed and everyone would be stunned that I was so fantastic in spite of it.  So I tried. I forged ahead.

The director asked us to sing My Country ‘Tis of Thee.  How long have you known that song?  Your whole life, right?  You can sing it in your sleep, probably.  So can I.  Alone.  But in this group of 50 other people, with the sopranos on my right and the men in front and to my right, I had absolutely no clue what key we were in.  I turned my head to try to hear my fellow altos, but no pitch I tried seemed to match what they were singing.  Three times we did the song, and three times I sang in fits and starts, trying to find my way, and three times I ended the song mouthing the words and fighting back tears.  At the break, I texted David, “This is some kind of disaster.”

I went to the director at the break and explained, through tears, my situation.  I told her I didn’t want to quit, that it was so important to me to be a part of this, to try to get this piece of my life back.  She was very sweet and understanding and moved me to the front row for the last part of rehearsal.  Unfortunately, that didn’t help.  When we started on the music we will be singing this “semester” to perform in November, I was totally lost.  When we did the song by parts, sopranos, then altos, then tenors, then basses, I was ok – mostly – but when we put it all together I was completely floundering.  I tried so, so hard, but I just couldn’t pick my part out of all the noise.  And that’s all it was, too, noise.  And it breaks my heart.

I’m not done trying.  I’ll just have to work harder than the others.  But I can’t say that I don’t long for the days when all of this just came easy to me.  Being in that room transported me back to the scene of so much success for me musically, and finding the present day experience so difficult is just a lot to take in.